Norm Hewitt, a former All Blacks hooker, Dancing with the Stars winner, and advocate for vulnerable children, has died at the age of 55 after battling motor neurone disease.
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New Zealand media reported that Hewitt passed away on Monday night.
This follows the loss of his former Hawke’s Bay and Hurricanes teammate, Jarrod Cunningham, who died of the same disease in 2007 at the age of 38.
Motor neurone disease (MND) is a progressive neurological disorder that affects the nerve cells responsible for controlling voluntary muscle movements, resulting in muscle weakness and atrophy.
“It with great sadness that the death of Norm Hewitt is recorded today,” Hewitt’s family said in a statement.
“Husband to Arlene, and father to his beloved children Elizabeth and Alexander, the former All Black and NZ Māori, Hurricanes and Wellington rugby captain passed away, in the company of his immediate family, in the early hours of this morning.
“Norm had been diagnosed with motor neurone disease.
“Norm’s funeral arrangements are private and his family similarly ask for their privacy at this difficult time, so that that they might properly grieve their husband, father, son and brother.”
Six rugby stars diagnosed with Motor Neuron Disease
This is a list of notable people who have or had motor neuron disease, a group of rare neurodegenerative disorders that selectively affect motor neurons, the cells which control voluntary muscles of the body.
#1. Rob Burrow – England
On 19 December 2019, it was publicly revealed Burrow had been diagnosed with Motor Neurone Disease (MND).
On 30 December 2020, Burrow was appointed MBE in the 2021 New Years Honours List for his services to Rugby League and the Motor Neurone Disease community.
On 16 March 2021, Burrow was awarded the Honorary degree of Doctor of Sport Science by Leeds Beckett University.
Sadly, he passed away on June 3rd 2024.
#2. Doddie Weir – Scotland
n June 2017, Weir announced that he had been diagnosed with motor neurone disease (MND), the announcement coinciding with global MND Awareness Day. In August, he spoke about plans to set up a foundation named ‘My Name’s Doddie’ in order to “raise funds for research into a cure for MND and to provide grants to people living with the condition”. In November, accompanied by his three sons, he walked the match ball on to the pitch at Murrayfield for the Autumn international test match between Scotland and the All Blacks.
A tartan was designed by Weir in collaboration with Berwickshire-based clothes firm ScotlandShop, in a bid to raise cash for his motor neurone disease research charity. The tartan features colours from the teams he played for: black and yellow of Melrose, blue and white of Scotland, and black of the former and white of the latter are also intended as a reference to his seven years with Newcastle Falcons. My Name’s Doddie: The Autobiography was published on 25 October 2018 through Black & White Publishing.
On 31 October 2018, Weir appeared on BBC One’s The One Show, where he stated that his charity had now raised over £1 million.
In January 2020 Weir confirmed his involvement in a clinical trial aimed at finding drugs that could slow, stop or reverse the progression of MND.
On the evening of 26 November 2022, his family announced that he had died of motor neuron disease, aged 52.[58][59] A memorial service was held at Melrose Parish Church on 19 December, with audio from the service relayed to Melrose RFC’s ground The Greenyards.